NCIN for Patients and the Public

Data is precious, and for many cancer patients is the only legacy they can leave behind. It should be of high quality, it should be stored carefully, and it should be available for researchers, to help ensure that it can bring maximum benefit to future generations. The NCIN can help to achieve this aim.

David Ardron, Chair, National Cancer Research Institute Consumer Liaison Group.

NCIN products and information

The majority of NCIN's publications and reports are aimed at health care professionals and analysts rather than patients and the general public. However, there is still a great deal of information on our website that will be of interest to these audiences and you should feel free to browse.

Both Cancer Research UK and Macmillan Cancer Support provide detailed information on cancer aimed specifically at cancer patients, their carers and their families. We also provide links to other sources of information for patients and carers from our pages on particular cancer types.

Sections of the website that may be of particular interest include:

Collecting and Using Data

This section of the website describes how we collect and use information about cancer patients and their treatment, and what safeguards are in place to ensure that only authorised personnel are able to access the information.

Cancer Information Tools

With our partners, NCIN have prepared a range of free and easy to use cancer information tools. The Cancer e-Atlas provides basic information on incidence, mortality and survival for the main types of cancers in males and females. We also have tools focusing on cancer inequalities, prevalence, screening and mortality.

Data Briefings

Data briefings are short documents highlighting one issue and written in an accessible style for a general audience. We aim to publish at least one new data briefing each month - the briefings published to date may be read online or downloaded as PDF versions to print.

Patient and the public involvement with NCIN

All of NCIN's groups from our Steering Group down include patients and the public, who play an active role in overseeing and directing our work. We work closely with the National Cancer Research Institute's Consumer Liaison Group to ensure that we give lay members of our groups a real opportunity to contribute.