Ovarian cancer resources

A range of ovarian cancer resources are presented in this section.

Key facts | Reports | Briefings | Posters | Presentations | Evidence | Guidance for health professionals | Site Specific Clinical Reference Group

Key facts

Cancer Research UK CancerStats

http://info.cancerresearchuk.org/cancerstats/types/ovary/

Statistics and information about ovarian cancer risk factors, symptoms, diagnosis, treatment, and future possibilities for screening, aimed at health professionals, provided by Cancer Research UK.


GLOBOCAN 2012 and other international cancer databases

http://globocan.iarc.fr/Default.aspx

The GLOBOCAN project provides contemporary estimates of the incidence of, mortality and prevalence from major types of cancer, at a national level, for 184 countries of the world. Current estimates are for 2012.

The website also provides links to other international cancer databases and resources including Cancer Incidence in 5 Continents - access to detailed information on the incidence of cancer recorded by regional or national cancer registries worldwide and the European Cancer Observatory (ECO) - a one-stop web-based tool for accessing, analysing and downloading European cancer data.


Reports

Living with and beyond ovarian cancer - March 2015

This report presents analyses of the Patient Reported Outcomes Measures (PROM) data, offering a descriptive summary of responses to a pilot of patient reported outcome measures for gynaecological cancers and provides a much needed insight into the health and wellbeing of women living with and beyond ovarian cancer.


Ovarian cancer awareness regional pilot results - February 2015

A regional ovarian cancer awareness campaign ran in the North West of England (Granada TV region) from 10 February to 16 March 2014. The campaign’s key message was ‘Feeling bloated, most days, for three weeks or more could be a sign of ovarian cancer. Tell your doctor’. A full and final evaluation report for the regional pilot ovarian campaign will be published when the analysis of all metrics is complete. In advance of the final evaluation report, this interim report provides the results available to date.


 

Saving lives, averting costs - An analysis of the financial implications of achieving earlier diagnosis of colorectal, lung and ovarian cancer - September 2014

 Saving lives, averting costs

This report was produced by Cancer Research UK and Incisive Health. It presents variations in the profile of stage at diagnosis for ovarian cancer patients by Clinical Commissioning Group (CCG) and models the effect on the cost of treatment if the profile of stage at diagnosis was to reflect the best performing areas.


 Survival by Stage Report - July 2014

A short report has been produced giving a brief summary of the main variation in one-year relative survival of the selected cancer types, including ovarian cancer, by stage, sex, age, and socio-economic deprivation. The report also compared the 2012 survival figures to those from the reports of the International Cancer Benchmarking Partnership (ICBP) from 2004-2007.


 

Overview of Ovarian Cancer in England: Incidence, Mortality and Survival (November 2012)

This report presents the latest time trends, trends by age and deprivation, and regional variations in incidence, mortality and survival for invasive ovarian cancer in England. There is also a separate section on these cases stratified according to their main morphological groups. The report should be of interest to all those involved in the commissioning and delivery of services to prevent, diagnose, and treat ovarian cancer. A Powerpoint slideset presenting analyses from the report is also available.


NHS treated cancer patients receiving major surgical resections

This initial report on major surgical resections in England presents the percentage of NHS treated cancer patients who received a major resection as part of their treatment. The report contains results for thirteen cancer sites, including cervix, ovary and uterus, and covers patients diagnosed during 2004-2006 who were followed up to 2007. Percentages are presented by sex, age, deprivation quintile and cancer network, with funnel plots depicting both percentages and indirectly age-standardised ratios by cancer network. Cancer networks have been assigned by the residence of patients at time of diagnosis. These data provide a basis to instigate further exploration of major surgical resections for cancer patients and to encourage improved recording and sharing of data to allow further analyses to be produced.


Cancer Statistics Registrations, England

http://www.ons.gov.uk/ons/publications/all-releases.html?definition=tcm%3A77-27454

Numbers and rates of newly diagnosed cases of cancer by site, sex and age, including ovarian cancer released by the Office for National Statistics (ONS).


Cancer Incidence and Mortality in the UK

http://www.ons.gov.uk/ons/publications/all-releases.html?definition=tcm%3A77-21518

Incidence and mortality statistics for 21 common cancers by sex, including ovarian, released by ONS.


Cancer Survival Rates in England

http://www.ons.gov.uk/ons/publications/all-releases.html?definition=tcm%3A77-21521

One and five-year survival statistics for 21 common cancers by sex and age, including ovarian released by ONS.


National Cancer Patient Experience Survey

http://www.quality-health.co.uk/surveys/national-cancer-patient-experience-survey

Information about the National Cancer Patient Experience Survey Programme and access to the survey results for each Hospital Trust.


Briefings

Data Briefing - Short Term Ovarian Cancer Mortality (April 2013)

Despite significant improvements over the last decade, ovarian cancer survival in England lags behind comparable countries, highlighted by results from the International Cancer Benchmarking Partnership (ICBP). The ICBP identified that the UK had particularly high mortality in the first few weeks following diagnosis, but did not have an unfavourable stage distribution.


Data Briefing - A Profile of Ovarian Cancer in England (November 2012)

Both ovarian cancer incidence and mortality have decreased in recent years whilst survival has improved. However, there are some important differences by age, particularly in survival rates. There are also interesting patterns in recorded tumour type by age. This data briefing was prepared by Trent Cancer Registry, the NCIN lead Cancer Registry for Gynaecological Cancer. The analysis is taken from the accompanying report "Overview of Ovarian Cancer in England: Incidence, Mortality and Survival".


Posters

2013

Short-term ovarian cancer mortality in England – investigating the causes

Trends in ovarian cancer and its treatment in N. Ireland 1996-2010

Routes to diagnosis for gynaecological cancer patients


Presentations

Overview of Ovarian Cancer in England: Incidence, Mortality and Survival (November 2012) - Slide set

This slide set has been produced to accompany the report "Overview of Ovarian Cancer in England: Incidence, Mortality and Survival" and presents charts taken from the report. Analyses include the latest time trends, trends by age and deprivation, regional variations in incidence, mortality and survival and cases stratified by the main morphological groups.


Ovarian Cancer Surgery by Specialists in Specialist Centres

Abstract for a presentation by John Butler, Department of Health, to the 2011 joint UKACR/NCIN conference.


Evidence

Links to peer-reviewed papers and journals dedicated to ovarian cancer and online, searchable libraries, providing details of relevant research and publications in journals and elsewhere.


British Journal of Obstetrics and Gynaecology

http://www.bjog.org/view/0/index.html

The official journal of the Royal College of Obstetricians and Gynaecologists (RCOG).


The Cochrane Collaboration

http://www.cochrane.org/index.htm

The Cochrane Collaboration makes information available regarding the effects of healthcare and produces and disseminates systematic reviews of healthcare interventions.


Gynaecological Cancer Centre - Barts and the London

http://corporatebarts.demo2.steellondon.com/our-services/gynaecological-cancer-centre/research

Barts and The London Gynaecological Cancer Centre conduct research projects into gynaecological cancer with the aim of improving current cancer treatments and patients’ survival. Research is conducted by team members from the Gynaecological Cancer Centre and colleagues from the Centres for Translational Oncology and Molecular Oncology within the Institute of Cancer at Barts and the London, Queen Mary School of Medicine and Dentistry.


Gynaecological Cancer Centre - Pan Birmingham

http://www.swbh.nhs.uk/services/d-g/gynaecology-cancer/research

The Pan Birmingham Gynaecological Cancer Centre is the hub of the pan-Birmingham gynaecological cancer network which provides tertiary level care for 5 cancer units. The centre is involved in prioritized clinical trials and translational research activity in oncology and has close links with the School of Cancer Sciences at the University of Birmingham.


Gynaecological Cancer Centre - West London

http://www1.imperial.ac.uk/surgeryandcancer/divisionofcancer/reproductivebiology/obsgyn/translational_research/gynaecological_oncology

Patients from 15 hospitals are referred to the West London Gynaecological Cancer Centre for multidisciplinary treatment for gynaecological malignancy. Patient management is underpinned by clinical and translational research.


Gynaecological Cancer Research Centre - University College London

http://www.instituteforwomenshealth.ucl.ac.uk/academic_research/gynaecologicalcancer/gcrc

The Gynaecological Cancer Research Centre is based at the Institute for Women’s Health at UCL. The group oversees and coordinates large multi-centre trials, with the overall aim of reducing mortality and morbidity of women with gynaecological malignancies through screening, early diagnosis and risk prediction.


Gynaecological Oncology Group - University of Manchester

http://www.medicine.manchester.ac.uk/cancerstudies/research/gynaecological/

The Gynaecological Oncology Group is based within the Academic Unit of Obstetrics and Gynaecology Group at St Mary's Hospital, Manchester. The Group hosts programmes of biomedical science as well as clinical trials and has been established as a leading centre of human papillomavirus (HPV) research both nationally and internationally.


Gynaecologic Oncology

http://www.sciencedirect.com/science/journal/00908258

The official journal of the Society of Gynaecologic Oncology (SGO).


Gynaecology Unit - The Royal Marsden

http://www.royalmarsden.nhs.uk/consultants-teams-wards/clinical-units/pages/gynaecology-unit.aspx

The Gynaecology Unit at the Royal Marsden provides multidisciplinary team management of gynaecological cancers for the South West London Cancer Network. The Unit is also involved in a varied programme of clinical research projects.


International Journal of Gynecological Cancer (IJGC)

http://journals.lww.com/ijgc/pages/default.aspx

The official journal of the International Gynecologic Cancer Society (IGCS) and the European Society of Gynaecological Oncology (ESGO).


National Cancer Peer Review Programme – CQuINS

http://www.cquins.nhs.uk/index.php?menu=resources

Information about National Cancer Peer Review (NCPR), a national quality assurance programme for NHS cancer services and access to the peer review measures for gynaecological cancer.


National Cancer Research Institute (NCRI)

http://www.ncri.org.uk

The National Cancer Research Institute (NCRI) is a UK-wide partnership between the government, charity and industry which promotes co-operation in cancer research among the 22 member organisations for the benefit of patients, the public and the scientific community.


National Institute for Health Research Cancer Research Network

http://ncrndev.org.uk

The National Institute for Health Research Cancer Research Network (formerly the National Cancer Research Network) was established by the Department of Health in April 2001 to provide the NHS with an infrastructure to support prospective trials of cancer treatments and other well-designed studies, and to integrate and support research undertaken by cancer charities. Its aim is to improve the speed, quality and integration of research, ultimately resulting in improved patient care. The website also includes details of the Local Cancer Research Networks across England.


NHS Atlas of Variation - Diagnostics services

http://sepho.org.uk/extras/maps/NHSatlasDiagnostic/atlas.html

A diagnostics e-atlas which includes data on the rate of use for CA125 tests and non-obstetric ultrasound activity at Primary Care Trust level. This may be useful for looking at the variation in diagnostic tests for suspected ovarian cancer.


NHS Evidence - ovarian cancer

https://www.evidence.nhs.uk/topic/ovarian-cancer

Searchable database providing evidence-based information on many health-related topics, including ovarian cancer, aimed at professionals across the NHS, public health and social care sectors.


Peer-reviewed paper on cancer survival in Australia, Canada, Denmark, Norway, Sweden, and the UK

Coleman MP, Forman D, Bryant H, Butler J, Rachet B, Maringe C, Nur U, Tracey E, Coory M, Hatcher J, McGahan CE, Turner D, Marrett L, Gjerstorff ML, Johannesen TB, Adolfsson J, Lambe M, Lawrence G, Meechan D, Morris EJ, Middleton R, Steward J, Richards MA; ICBP Module 1 Working Group. Cancer survival in Australia, Canada, Denmark, Norway, Sweden, and the UK, 1995-2007 (the International Cancer Benchmarking Partnership): an analysis of population-based cancer registry data. The Lancet, 8 January 2011, 377(9760): 127-138. doi:10.1016/S0140-6736(10)62231-3


PubMed

http://www.ncbi.nlm.nih.gov/pubmed

Database of citations from MEDLINE and life sciences journals, provided by the U.S. National Library of Medicine and the U.S. National Institutes of Health


The Target Ovarian Cancer Pathfinder Study

http://www.targetovariancancer.org.uk/page.asp?section=43&sectionTitle=The+Target+Ovarian+Cancer+Pathfinder+Study

Information about the study, which was first run in 2009, tracking the experiences of those living with and working with ovarian cancer in the UK.


World Cancer Research Fund International

http://www.wcrf.org/cancer_statistics/data_specific_cancers/index.php

The World Cancer Research Fund International (WCRF) website has information on the most common cancers affecting men and women worldwide and includes data on cervical, ovarian and uterine cancer.


Guidance for health professionals

The British Gynaecological Cancer Society (BGCS)

http://www.bgcs.org.uk

The BGCS works to improve the care provided to patients with gynaecological cancers. The BGCS website includes information for both patients and health professionals.


European Society of Gynaecological Oncology (ESGO)

http://www.esgo.org

The ESGO is the principal European society contributing to the study, prevention and treatment of gynecological cancer.


International Gynecologic Cancer Society (IGCS)

http://www.igcs.org/

The IGCS is a not for profit independent organisation contributing to the prevention, treatment and study of gynecologic cancer, as well as improvement in the quality of life among women affected by gynecologic cancer throughout the world.


NICE Pathways for ovarian cancer

http://pathways.nice.org.uk/pathways/ovarian-cancer

NICE Pathways is an online tool for health and social care professionals and members of the public that brings together all related NICE guidance and associated products in a set of interactive topic-based diagrams. This pathway presents all of NICE's recommendations and guidance on ovarian cancer.


NICE quality standard for ovarian cancer

http://www.nice.org.uk/guidance/qualitystandards/ovariancancer/home.jsp

NICE quality standard defines clinical best practice within the diagnosis and treatment of ovarian cancer. It provides specific, concise quality statements, measures and audience descriptors to provide the public, health and social care professionals, commissioners and service providers with definitions of high-quality care.


Royal College of Obstetricians and Gynaecologists (RCOG)

http://www.rcog.org.uk

The RCOG works to advance the science and practice of obstetrics and gynaecology, through education, training and the publication of clinical guidelines and reports on aspects of the specialty and service provision.


Scottish Intercollegiate Guidelines Network (SIGN)

http://www.sign.ac.uk/guidelines/fulltext/75/index.html

SIGN guidelines on epithelial ovarian cancer.


Society of Gynaecologic Oncology (SGO)

http://www.sgo.org

The SGO works to promote the highest quality of comprehensive clinical care through education and research in the prevention and treatment of gynaecologic cancers


Site Specific Clinical Reference Group

Details of the meetings and membership of the Gynaecological Site Specific Clinical Reference Group.