COSD v8.0 Downloads

This page contains downloads for the Cancer Outcomes and Services Dataset (COSD) Version 8.0.

Is this the correct version of COSD to use?

  • Version 7.0 must be used for all submissions from 1 July 2017 diagnoses onwards
  • Either v7.0 or v8.0 can be used for diagnoses between 1 April 2018 and 30 June 2018 
  • Version 8.0 only must be used for all submissions from 1 July 2018 diagnoses onwards. Any exceptions to this must be agreed with the National Cancer registration and Analysis Service (NCRAS)

Current documentation for COSD v8.0

Pathology dataset

Following consultation with Laboratory Information Management System (LIMS) Suppliers and the Chair of the Royal College of Pathologists (Working Group on Cancer Services), minor alterations to the structure or contents of the dataset have been made in the updated versions of the pathology documents below. Details of the changes are in the spreadsheet summary.

This dataset and schema are now frozen and final until the next iteration of COSD is released.

COSD Main Dataset

Schema

To download either the Main COSD or Pathology schema packs, you first need to create a TRUD account.

How to create a TRUD account

See the NHS Digital XML Schema TRUD Download webpage for further information and to be guided through the process or

Go straight to the NHS Digital TRUD website:

    • Select 'create one now' (directly under 'log in')
    • Fill out the online form
    • You will be sent a password
    • Log in with your new password. Once logged in you can change your password via 'Manage account' (top right hand of the screen)

How to download a schema pack

Once you have a TRUD account:

    • Go to the NHS Digital TRUD website and log in
    • Select 'DD XML Schemas' from the 'Downloads' section (far left of the screen)
    • Identify the schema pack you want and 'subscribe to this dataset'
    • Tick 'I accept the licence' and then 'Request this subscription'
    • You will receive a confirmation email
    • Download the required schema pack

Conformance

A revised Conformance Framework has been published to align with v7.0. This current Framework v6.1a, can be downloaded from the main dataset documentation above.

It has been amended to take account of the changes in v7.0 and will be reviewed at the end of 2017.

Why change to COSD v8.0?

It is important to constantly maintain clinical accuracy and engagement with the MDT teams and to achieve this we needed to review and make some important changes to the dataset. These changes continue to build on the work started in v7.0. They include some new amendments and re-alignments to the current data set, as well as a revision of the current schema specification in order to continue to meet the business objectives of the standard.

The COSD v8.0 amendments were made following extensive consultation over a 6 month period with 47 key groups or clinical experts. These included the Site Specific Clinical Reference Groups (SSCRGs) and experts from within the National Cancer Registration and Analysis Service (NCRAS). We also sought clinical support and advice from the chair of the Royal College of Pathologists Working Group on Cancer Services and for the first time, consulted cancer charities and patient groups.

This process completes the work started in 2016. It has allowed the data set to be clinically reviewed, validated and updated by experts in all fields of cancer. It also provides a clinically sound set of data to be collected from 2018 onwards, which meets crucial recommendations in the Achieving World-Class Cancer Outcomes, A Strategy for England 2015-2020 (Cancer Taskforce Report).  

In total, 92 data items were removed and 39 new ones added. More importantly, there is a completely new way to record recurrences, progression and transformation. This should improve both ascertainment and accuracy.

Finally, many cancer in Children, Teenagers and Young Adults (CTYA) items have been moved either to their parent tumour site or to the CORE. It was felt these items could also be collected on adult patients. This has removed duplication across the data set and is hoped will also improve ascertainment over time. However, there will be a full assessment of these items during the review process for COSD v9.0.

Changes to CancerStats

CancerStats continues to be a vital resource for Trusts. The following reported areas are currently available:

      • Incidence, Survival and Mortality
      • COSD
        • Level 1, 2 and 3
        • Updated staging sheets
        • Submission dates
        • Document library
      • National Lung Cancer Audit (NLCA)
      • National Prostate Cancer Audit (NPCA)
      • Clinical Headline Indicators (CHI)
      • New areas to come on Pathology conformance reporting

Help and feedback

Contact your local NCRS office or email COSDenquiries at phe dot gov.uk link COSDenquiries@phe.gov.uk with comments and feedback on the documentation.

We value feedback and suggestions for improvements to COSD. It is hoped that a new COSD Change Request form will be available via the CancerStats website before April 2018. This form will allow key stakeholders to let us know about any suggestions for potential new data items or changes to existing ones.

 

Return to the Cancer Outcomes and Services Dataset (COSD) home page.