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Cancer Outcomes Conference 2013: Intelligence - the primary driver of cancer outcomes

Programme and speaker presentations

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You can now watch Thomas Green and Chris Carrigan's presentation about putting the patient at the heart of what we do:

DAY ONE – 12th JUNE

12:00 – 13:15       Conference registration

12:00 – 13:15       Lunch, exhibition and demonstrations

13:15 – 15:00       Plenary session: the vision for disease registration - The Brian Cottier session

Recent years have seen the publication of cancer strategies from the four nations of the UK.  For Northern Ireland - Cancer Control Programme, for Wales - Designed to Tackle Cancer, for Scotland - Better Cancer Care, An Action Plan, and, under the coalition government’s reforms of the NHS in England - Improving Outcomes: A strategy for Cancer, with its aim to “orientate the NHS, public health and social care services towards delivering the improvements in outcomes which matter – rather than measuring processes which do not”.  A modern cancer registration infrastructure is now in place, to allow for the real-time data collection of cancer outcomes over the entire cancer care pathway for all patients treated in England.  This plenary session will scope out the future for cancer registrations in England and the impact of UK wide intelligence on public health.  It will also introduce Public Health England’s vision for cross-disease intelligence and how this data will be used to meet the outcomes of Domain One – preventing people dying prematurely.

13:15 - 13:25

Chair's welcome - John Symons, Director, Cancer of Unknown Primary (CUP) Foundation
13:25 - 13:45

Public Health England's vision for health intelligence - Duncan Selbie, Chief Executive, Public Health England
13:45 - 14:05

Cancer registration: towards a world-class registration service -Dr Jem Rashbass, National Director for Disease Registration, Public Health England
14:05 - 14:25

Using information to improve cancer outcomes - Harpal Kumar, Chief Executive, Cancer Research UK
14:25 - 14:45

Preventing premature deaths - Professor Sir Mike Richards, Director for Reducing Premature Mortality (Domain 1), NHS England 
14:45 - 15:00

Questions to the speakers and Chair's closing remarks

15:30 – 17:30       Workshops

Patient outcomes and policy

15:30 - 15:45

Chair's introduction - Richard Stephens, Chair, Consumer Liaison Group, National Cancer Research Institute
15:45 - 16:05

How does the NCIN's intelligence influence Specialised Commissioning the Commissioning Outcomes Framework and GP awareness? - Di Riley, Associate Director, Clinical Outcomes Programme, National Cancer Intelligence Network
16:05 - 16:25

Using intelligence to impove outcomes through Clinical Commissioning Groups and Peer Review
16:25 - 16:45 Primary care cancer intelligence for cancer survivors - Professor Clare Wilkinson, Professor of General Practice and Director of Research, North Wales Clinical School, North Wales Centre for Primary Care Research 
16:45 - 17:25 Questions to the speakers and discussion
17:25 - 17:30 Chair's closing remarks

Data processing, management and quality

15:30 - 15:35 Chair's introduction - Chris Carrigan, Director, National Cancer Intelligence Network / Deputy to the Chief Knowledge Officer, Public Health England
15:35 - 16:00

Health informatics in the UK
16:00 - 16:20 The first national chemotherapy treatment data system in the world - Steve Davies, Principal Systems Specialist, National Cancer Intelligence Network 
16:20 - 16:40 Delivering data to drive new research - John Parkinson, Director, Clinical Practice Research Datalink 
16:40 - 17:00 Supporting transparency versus data protection - what does this mean? - Eve Roodhouse, Programme Head, Data Linkage, Health and Social Care Information Centre 
17:00 - 17:25 Questions to the speakers and discussion
17:25 - 17:30 Chair's closing remarks

Analysis of cancer outcomes

15:30 - 15:40 Chair's introduction - Dr Anna Gavin, Director, Northern Ireland Cancer Registry and National Lead for Analysis and Information, National Cancer Intelligence Network
15:40 - 16:00 Data visualisation: funnel plots and mapping for small-area cancer survival - Manuela Quaresma, Research fellow in statistics, London School of Hygiene and Tropical Medicine 
16:00 - 16:15 How does a diagnosis of cancer affect life expectancy? Making use of the loss in expectation of life - Professor Paul Lambert, Department of Health Sciences, University of Leicester, UK and Department of Medical Epidemiology and Biostatistics, Karolinska Institutet, Sweden 
16:15 - 16:30 Striking variation in diagnostic pathways for urological cancers: Evidence from the Cancer Waiting Times data - Luke Hounsome, Principal Cancer Intelligence Analyst (Urological Cancers and End of Life in Cancer), Public Health England Knowledge and Intelligence Team (South West) 
16:30 - 16:45 Accessing data - an introduction to the Cancer Analysis System - Sally Vernon, Head of Quality and Analysis, National Cancer Registration Service (Eastern Office), Public Health England 
16:45 - 17:05 Analysis of UK-wide incidence mortality and survival results: the key challenges and next steps - Rebecca Elleray, Senior Cancer Intelligence Analyst, Public Health England Knowledge and Intelligence Team (East Midlands) 
17:05 - 17:25 Questions to the speakers and discussion
17:25 - 17:30 Chair's closing remarks

17:30                      Close of day one

DAY TWO – 13th JUNE

08:00 – 09:00       Conference registration for delegates arriving on day two

09:15 – 10:30       Plenary session: Does what we know change what we do? Part I

Research tells us what works and what doesn’t. But is this always put into practice?  This is the first of two sessions today in which speakers will explore the translation of knowledge into changing practice and outcomes.  Speakers will highlight both the improvement of outcomes for patients and obstacles that stand in the way of improving the quality of care. 

09:15 - 09:20 Chair's welcome - Dr David Brewster, Director, Scottish Cancer Registry
09:20 - 09:40 Surgical volumes and cancer survival - Professor Henrik Møller, Professor of Cancer Epidemiology, King's College London
09:40 - 10:00 Cervical screening and HPV testing - Professor Peter Sasieni, Deputy Director, Centre for Cancer Prevention, Wolfson Institute of Preventative Medicine
10:00 - 10:20 Your cancer your choice? - Dr Mick Peake, Clinical Lead, National Cancer Intelligence Network 
10:20 - 10:30 Questions to the speakers and Chair's closing remarks

10:30 – 11:00       Refreshments, exhibition and poster viewing

11:00 – 12:30       AM Parallel sessions

Co morbidities

11:00 - 11:15 Chair's introduction - Robin Crawford, Co-Chair, National Cancer Intelligence Network Co-mobidity Group
11:15 - 11:30 Simplifying the measurement of co-morbidities and their influence on chemotherapy toxicity - Dr Raj Sinha, Clinical Research Fellow in Medical Oncology, Brighton and Sussex University Hospitals NHS Trust and Brighton and Sussex Medical School 
11:30 - 11:45 A scalable electronic system for collecting co-morbidity data in cancer outpatient clinics - Dr Penny Wright, Macmillan Principal Research Fellow, University of Leeds 
11:45 - 12:00 Derivation of a Charlson co-mobidity index from routine HES data - Carolynn Gildea, Public Health England Knowledge and Intelligence Team (East Midlands) 
12:00 - 12:15 What is frailty and why is it important - Dr Tony Moran, Consultant in Public Health, Public Health England Knowledge and Intelligence Team (North West) 
12:15 - 12:30 Questions to the speakers and Chair's closing remarks

Understanding patient experience

11:00 - 11:15 Chair's introductory talk - Dr Mick Peake, Clinical Lead, National Cancer Intelligence Network 
11:15 - 11:30 How hospital managers and clinicians can identify priorities for improvement of cancer patient experience. What can be learned from the National Cancer Patient Experience Survey? - Gary Abel, Cambridge Centre for Health Services Research, University of Cambridge
11:30 - 11:45 Exploring the influence of case-mix on hospital scored of cancer patient experience to better inform data interpretation and identify priorities for improvement actions - Georgios Lyratzopoulos, Cambridge Centre for Health Services Research, University of Cambridge
11:45 - 12:00 Long-term physical and psychological side-effects of prostate cancer treatments: a population=based study - Heather Kinnear, Queen's University Belfast 
12:00 - 12:15 Patient reported complications following gynaecological oncology surgery what do they add? A prospective cohort study - Rema Iyer, Gynaecological Cancer Research Centre, University College London 
12:15 - 12:30 Questions to the speakers and Chair's closing remarks

The cost of cancer

11:00 - 11:15 Chair's introductory talk - Professor Peter Smith, Professor of Health Policy, Imperial College Business School and Centre for Health Policy
11:15 - 11:30 Effectiveness and cost effectiveness of an awareness campaign for colorectal cancer: a mathematical modelling study - Dr Sophie Whyte, University of Sheffield
11:30 - 11:45 The cost of lost productivity due to premature cancer-related mortality: an alternative measure of the cancer burden - Dr Linda Sharp, National Cancer Registry, Ireland
11:45 - 12:00 The cost of providing care to lung cancer patients at the end of life - Jeff Round, University College London 
12:00 - 12:15 Costing the new cancer pathway - association between cancer type and costs of hospital care in England - Dr Mauro Laudicella, Imperial College London 
12:15 - 12:30 Questions to the speaker and Chair's closing remarks

12:30 – 14:00       Lunch, exhibition, demonstrations and poster viewing

14:00 – 15:30       PM Parallel sessions

Information & intelligence changing practice

14:00 - 14:15 Chair's introductory talk - Dr Michael Chapman, Project Director, Cancer Patient Portal, Cancer Research UK
14:15 - 14:30 Variation in gastroscopy rate in English general practice and outcomes for oesophago-gastric cancer: retrospective analysis of Hospital Episode Statistics - Mustafa Shawihdi, Institute of Translational Medicine, University of Liverpool
14:30 - 14:45 Post-diagnostic use of angiotensin-converting enzyme inhibitors and angiotensin receptor blockers and risk of breast cancer-specific mortality: a nested case-control study - Una McMenamin, Centre for Public Health, Queen's University, Belfast
14:45 - 15:00 Ensuring variations in clinical practice are represented accurately in the new national cancer chemotherapy (Systemic Anti-Cancer Therapy) programme - Ken Lloyd, Public Health England 
15:00 - 15:15 Higher resection rates are associated with better survival in lung cancer - Dr Paul Beckett, Royal College of Physicians 
15:15 - 15:30 Questions to the speakers and Chair's closing remarks

Screening, prevention and diagnosis

14:00 - 14:15 Chair's introductory talk - Sara Hiom, Director of Patient Engagement and Early Diagnosis, Cancer Research UK
14:15 - 14:30 What impact did the national "Be Clear on Cancer" campaigns have on urgent GP referrals for suspected cancer? - Carolynn Gildea, Public Health England Knowledge and Intelligence Team (East Midlands)
14:30 - 14:45 How much of the deprivation gap in cancer survival can be explained by variation in stage at diagnosis: an example from breast cancer - David Greenberg, National Cancer Registration Service (Eastern Office), Public Health England
14:45 - 15:00 Should GP's investigate or refer for lower-risk cancer symptoms, and does it matter? Evidence from a National Audit 2009-2010 - Professor Greg Rubin, University of Durham
15:00 - 15:15 Cancer diagnosed by emergency admission using the General Practice Research Database - Dr Paul Aylin, Clinical Reader in Epidemiology and Public Health, Imperial College London
15:15 - 15:30 Questions to the speakers and Chair's closing remarks

Living with and beyond cancer

14:00 - 14:15 Chair's introducory talk - Dr Siobhan McClelland, Head of Evidence, Macmillan Cancer Support
14:15 - 14:30 Prevalence of consequences of treatment for common pelvic cancers - Professor Jane Maher, Macmillan Cancer Support and Hannah McConnell, Macmillan Cancer Support
14:30 - 14:45 Risk of low health related quality of life in prostate cancer survivors increases with increasing time since diagnosis - Dr Frances J Drummond, National Cancer Registry, Ireland
14:45 - 15:00 Utilising a Requirements Management approach to integrate user and professional views into the design of a cancer survivorship service. A report from the ON TARGET programme - Paul Beynon, University Hospitals Bristol NHS Foundation Trust
15:00 - 15:15 Using cancer registration and multidisciplinary team data to provide information on recurrent and metastatic breast cancer - Dr Gill Lawrence, Public Health England Knowledge and Intelligence Team (West Midlands) 
15:15 - 15:30 Questions to the speakers and Chair's closing remarks

15:30 – 16:00       Refreshments, exhibition and poster viewing

16:00 – 17:15       Plenary session: Does what we know change what we do? Part II

Research tells us what works and what doesn’t. But is this always put into practice?  This is the second of two sessions today in which speakers will explore the translation of knowledge into changing practice and outcomes.  Speakers will highlight both the improvement of outcomes for patients and obstacles that stand in the way of improving the quality of care. 

16:00 - 16:05 Chair's introduction - Dr Jane Barrett, President, The Royal College of Radiologists
16:05 - 16:25 Closing the gender gap in cancer - the problem with men - Professor Alan White, Centre for Men's Health, Leeds Metropolitan University
16:25 - 16:45 Information - does it change practice? - Di Riley, Associate Director, Clinical Outcomes Programme, National Cancer Intelligence Network 
16:45 - 17:05 How evidence influences policy - Ciarán Devane, Chief Executive, Macmillan Cancer Support 
17:05 - 17:15 Questions to the speakers and Chair's closing remarks

19:00                      Pre-dinner reception in the exhibition hall

19:30                      Conference dinner and entertainment

DAY THREE – 14th JUNE

08:00 – 09:00       Conference registration for delegates arriving on day three

08:00 – 09:00       AGM of the UK Association of Cancer Registries

08:30 – 09:30       Refreshments, exhibition and poster viewing

09:30 – 11:00       AM Parallel sessions

Less common cancers

09:30 - 09:45 Chair's introduction - Simon Davies, Chair of Cancer52, Chief Executive, Teenage Cancer Trust
09:45 - 10:00 Gynaecological sarcomas: incidence and survival (England 1985 - 2009) - Nicola Dennis, Public Health England Knowledge and Intelligence Team (West Midlands)
10:00 - 10:15 The morphology of cervical cancer in England: patterns in incidence, treatment and survival - Marta Emmett, Public Health England Knowledge and Intelligence Team (East Midlands)
10:15 - 10:30 Presenting brain tumour statistics to the public: unravelling complexity - Dr Katrina Brown, Cancer Research UK
10:30 - 10:45 Endoprosthetic replacements: 30-day readmissions and subsequent amputations (2000-2009) - Matthew Francis, Public Health England Knowledge and Intelligence Team (West Midlands)
10:45 - 11:00 Questions to the speakers and Chair's closing remarks

Disparities in cancer outcomes

09:30 - 09:45 Chair's introductory talk - Dr Jane Hanson, Lead Advisor for Cancer, Welsh Government and Head of Cancer National Specialist Advisory Group Core Team
09:45 - 10:00 National trends in the place of death and unscheduled hospital admissions in patients with gynaecological cancer in England: 2000-2012 - Sonali Kaushik, Cheltenham General Hospital, Gloucestershire Hospitals NHS Trust and Public Health England Knowledge and Intelligence Team (South West)
10:00 - 10:15 An exploratory study of the role of culture, faith and family in mediating or reinforcing challenges to recovery during early transition period following breast cancer treatment: a comparative study of White British, Black Caribbean and South Asian patients' experiences - Karen Scanlon, Breast Cancer Care
10:15 - 10:30 Factors affecting who receives surgery for oesophageal and gastric cancers in England, 1998-2009 - Victoria Coupland, Public Health England Knowledge and Intelligence Team (London) and King's College London
10:30 - 10:45 Cancer in patients with mental illness - differences and outcomes - Dr Anna Gavin, N. Ireland Cancer Registry, Queen's University Belfast
10:45 - 11:00 Questions to the speakers and Chair's closing remarks

Applied epidemiology

09:30 - 09:45 Chair's introductory talk - Dr Paul Aylin, Clinical Reader in Epidemiology and Public Health, Imperial College London
09:45 - 10:00 A retrospective observational study of the relationship between family history and survival from colorectal cancer - Dr Eva Morris, University of Leeds
10:00 - 10:15 Breast cancer incidence in Leicester 2000 - 2009 - David Florentin, University of Sheffield
10:15 - 10:30 Diverging trends in lung cancer survival in males and females 1999-2008 - Sharma Riaz, King's College London, Public Health England Knowledge and Intelligence Team (London)
10:30 - 10:45 Short-term ovarian cancer mortality in England - investigating the causes - Matthew Barclay, Public Health England Knowledge and Intelligence Team (East Midlands)
10:45 - 11:00 Questions to the speakers and Chair's closing remarks

11:00 – 11:30       Refreshments, exhibition and poster viewing

11:30 – 12:45       Plenary session: What can we learn from others?  What can others learn from us?

This session will examine what the National Cancer Intelligence Network can learn from other intelligence networks and will then explore what the National Cancer Intelligence Network can share with others; is cancer a a model for a new national disease surveillance network? 

11:30 - 11:35 Chair's introduction - John Newton, Chief Knowledge Officer, Public Health England
11:35 - 11:50 Cancer intelligence beyond the UK - what can we learn from others and what can others learn from us - Dr David Forman, Head of Cancer Information Section, International Agency for Research on Cancer
11:50 - 12:10 Wider disease intelligence networks - Professor Brian Ferguson, Director, Public Health England Knowledge and Intelligence Team (Northern and Yorkshire) 
12:10 - 12:30 Putting the patient at the heart of what we do - Thomas Green, Patient, Teenage Cancer Trust and Chris Carrigan, Director, National Cancer Intelligence Network and Deputy to the Chief Knowledge Officer, Public Health England
12:30 - 12:45 Questions to the speakers and Chair's closing remarks

12:45 – 13:00       Poster awards

13:00 – 14:00       Lunch, exhibition and poster viewing

14:00                     Close of conference